Monday, February 18, 2008

ANNIVERSARY


Saturday - February 16, was a big anniversary for me. First, one year ago on February 16th, I spent seven hours in the emergency room at Kaseman Hospital and left there knowing that I had a growth or tumor on my pancreas that was probably cancer. This is not an event that most people would want to even remember much less celebrate, but it was to become one of the most important events in my life and I will never forget this date.

Without going into all the details again, this trip to the emergency room was full of coincidences which probably ended up saving my life. It was a major coincident that the emergency room doctor even found the tumor as it was so well hidden under other parts of my intestine - and on top of that, he wasn't even looking for this particular problem. He had been told, by me and by my primary care doctor, that I might be having a problem with my aneurysm or was experiencing some type of heart problem. I was so lucky to get this very thorough doctor, and this was just the beginning of a long list of blessings that I received during the past 12 months.

As a result of what happened on February 16, 2007, I have have twelve months of treatment, one of the most serious and complex surguries you can have, and the cancer has been completely removed from my body. I am now cancer free. To me this is definately an anniversary worth remembering and celebrating.

To make this date of February 16th even more special to me, is the fact that it is the birthdate of my wonderful son, Scott. He has been one of the major blessings to me during this past year as I have been engaged in battle with cancer. He has taken time off from work and gone back and forth to Houston with me, gone to all the doctor meetings, has done research on the computer about the treatments, the medications, etc., he was been with me when I had chemotherapy and radiation treatment in Houston. More than anything else, he has protected me from worry and concern about anything and everything he could. He has run interference for me on just everyday things so I don't have to be concerned about the routine challenges of everyday life.

I remember the night I left the emergency room around 11:00 pm I called Scott. At that point I was pretty shook up. I had just been told I probably had cancer and this was not something I was expecting. I called Scott and poured my heart out - not even remembering that it was his birthday. What a present! I feel guilty to this day for even calling him, but he took it like he does everything else. He was so understanding and sympathetic and helpful - it was like that was all he had on his mind.

A couple of other neat things happened on Saturday to just add frosting to the cake. A wonderful couple I have known for years, Joe and Bunny, called and I had a nice long visit with them. I hadn't seen them for years and then we got reunited several years ago when Joe and I were both going to the same physical therapist. Then we kind of lost track again until we ran into each other again at New Mexico Oncology when I was going through the eight hour sessions of chemotherapy at NM Oncology. They called to tell me they had run into a neat lady at NM Oncology who had pancreatic cancer - just like me, had gone to MD Anderson in Houston, just like me, and had experienced some problem with weight loss - just like me. However, she is a dietitian and has figured out a solution to her weight loss problem. She agreed to visit with me and I will be calling her tomorrow. This is yet another one of the wonderful experiences I have had on this journey with cancer. I have run into so many people or been introduced to so many people who were complete strangers who have become friends and have helped me so much with their individual stories and experiences and their support. They have embraced me as if we had a lifetime friendship and I was the most important person in their life.

Let's see - I already said I was adding frosting to the cake, so I guess I will have to say now we are going to add a big red juicy cherry to the top of the cake as I still had one more enjoyable event for the day. Because of Scott's birthday, Mary Marlin, Scott and Sheri and I all went out for a fabulous dinner. The Great American Steakhouse is at the corner of Tramway and Indian School Road and sits up on a hill and overlooks the city and the West Mesa and volcanoes. It is a beautiful setting, but much more important than that is the food. It has to be one of the best, if not the best, restaurants in the city. The food is absolutely outstanding and the portions are huge. In fact, as part of the standard menu, you can order an extra plate and two people can share a meal. I would guess that most people do that. A steak of any kind will almost completely cover the platter. In addition, the baked potato will cover half the platter, so you almost always have a portion of the meal hanging over the edge of a very large platter.

The one thing I love more than anything else at this restaurant is the chicken fried steak. I almost cried every time a server would wheel the cart past me with a chicken fried steak with every square inch covered with cream gravy. I just wanted to grab the steak and start eating it myself, or at least stick my finger in the gravy and lick off my finger. But, even with the meal sharing, I am the only person in our group that had this craving for chicken fried steak. My good wife did remind me that in the past, I would order the chicken fried steak and eat the whole thing by myself. She made some snide remark about that being one reason I used to be the size of the Good Year blimp. She actually didn't come right out and say it like that - she doesn't have to. You get the point. I have always tried to convince her that I order the chicken fried steak because it is the least expensive item on the menu. It is the financially prudent thing for me to do. I don't think she ever bought into it. Anyway, she ordered briskit and shared a few bites with me and then still came home with a box nearly full of briskit.

To celebrate Scott's birthday to the fullest, Scott ordered a bottle of wine. The server poured the wine into the glasses - serving Scott last. The server misjudged a little and when he got to Scott's glass, Scott got about 2/3 as much as everyone else. I was just ready to switch glasses with Scott - but didn't get the chance. I was ordered by good wife to give Scott my glass of wine. If you haven't figured it out yet, I am on a very short leash. Actually, this is the first taste of alcohol I have had since around the first of September. I used to enjoy a couple of beers when I came home from work at night. Now just the idea of drinking almost anything is repulsive to me. In fact I have doctors suggesting that I drink some beer just to try to gain some weight, but so far I have not done it. After a few tiny sips of the wine, I gave my glass to Scott. The taste was terrible as far as I was concerned. Scott and Sheri are good friends of the couple who own this restaurant, and while they were not there Saturday night, they left instructions for a bottle of wine to be delivered to Scott at his table when he came in as a birthday present from them. The server waited until we had bought a bottle of wine before they presented Scott with this bottle - I am sure this was not a intentional act, it just happened that way.

An interesting side-light to this whole thing, which is yet another blessing, is the fact that Scott and Sheri are friends with the people who own this restaurant. These folks had a baby who was born very pre-mature with some serious medical problems. I don't have all the details, but I think the little baby had been hospitalized almost since birth with these problems. Scott started going down to Houston to take care of me and came back and told these people about our wonderful experience and about the fantastic medical community in Houston. Again, I don't know the details, but Scott helped these people with information and research and they were able to get their baby admitted to Texas Children's Hospital. I think they had to do some battle with their insurance carrier, but were able to get the baby down to Texas Children's Hospital in Houston. In fact, Texas Children's Hospital flew their private ambulance jet to Albuquerque and picked up the mother and baby and took them down to Houston and the mother was able to stay at the Ronald McDonald House in Houston. Within a matter of days the baby was much improved with the treatment she received in Houston. I believe they have been back to Houston a time or two since and each time they are transported on the ambulance jet of Texas Children's Hospital. Just another example of the blessings that flow freely among good people.

Well I talked about adding frosting to the cake and then talked about putting a big red cherry on top - but we haven't even gotten to the cake yet. Sheri, who has excellent taste in cakes, bought Scott a fantastic birthday cake and brought it up to our house and we came home after dinner and lit up the candles, sang "Happy Birthday" and started eating cake. Cake and sweets are another thing that I have a problem eating any more, but this cake was special. It had a special kind of frosting - it wasn't the typical frosting, and it was delicious. After we had some cake and ice cream, they cut off about half the remaining cake and left it with us. Mary is a sweet person - I mean she is sweet but she also loves sweets. Sunday morning she got up early to go to her jazzercise class and when I got up I noticed there was evidence that she had a good size piece of cake for breakfast. At least I hide the evidence. I wash off the plate and fork real good and then stick them in the dishwasher. I can always claim there were vegetables on the plate. You can't convict without evidence.

The recovery process is still going on. I am still doing everything I can think of to put on some weight. I still have about three doctor appointments each week. Last week I met with an Endocrinologist, the next day a Gastroenterologist, and the next day an Oncologist. They all had the same objective - trying to figure out why I am still losing weight and trying to figure out what to do to help me gain weight. They gave me a shot and out almost immediately and ran the camera down my throat into my intestine and said everything looked great and all the repairs had healed properly. There was some minor inflamation where they had attached the small intestine to the stomach, but they said that was normal and not a problem. I am talking to one of the doctors about getting on some form of steroid to build back the muscle mass and increase appetite. I am sure this will cause a stir in the baseball community and I will start getting all kinds of phone calls. I guess just see it now - in bright lights - "Home Run Hurt" - breaks all records set by Babe Ruth, Hank Aaron, Bary Bonds, Sammy Sosa and Pete Rose. Another doctor has cautiously suggested I try marijuana. It is being used here by a number of cancer patients. It helps reduce the pain and it increases the appetite. I am thinking I might use both the steroids and the marijuana at the same time. No telling where that baseball could go when I hit it.

There is at least one up-side to all the weight I have lost (155 now). I went down to the safty deposit box and found my wedding ring which I had not worn for years. When I first received it, it fit just fine, but it was made of some kind of material that started shrinking and after not too many years I couldn't even get it on my pinkie. Now it fits just fine again, and the only problem now are all the sad faces on pretty ladies with tears in their eyes as they have discovered I am in fact a married man. Please understand I have never done anything to lead anyone on or to suggest in any manner that I was not married. I am very married! But, you can't blame the poor ladies who see a gorgeous man without a wedding band - well they just start to assume things.

It is time to sign off. I will get you more news as soon as I have any!

God Bless and I love you all!!!

AL

ps - Spell check is still not working so I had to use the dictionary to help me and I am sure I didn't catch all the errors. It did take me about twice as long as it should to do this entry - I had to check on just about every word that had more than three letters. I never could figure out how you are supposed to look up a word to see how to spell it when you can't spell it to begin with - where are you supposed to look? If you knew where to look, that would mean you know how to spell the word - so there would be no reason to look!

1 comment:

Anonymous said...

Al, isn't it a blessing to have considerate, competent children? I really understand how you feel. Mine are going through difficulet times right now and since I'm 800 miles from then it's difficult but I take solice in the fact at how competent they are.

I've really enjoyed your blog this past year and as I've said before your sense of humor is nonpareil (there's one for you to look up) but then with your intelligence I'm sure you know what it means.

Again as I've said before your positive attitude is what has brought you to where you are today and inspiration for all of us. Prior to watching you go through this trial I'd always said, If I get pancriatic cancer I'd tell em make me comfortable and I'll coast out. You've shown that medical science has conquered or certainly in the process of conquering another element of that dispicable disese.

God bless you my friend and keep on keepin' on.

Wayne Rose